Sunday, August 27, 2017

Dear Donna Preston,

You're much prettier in your headshot than the way they had you made up in Hit Man's Bodyguard, which I saw today. It was a pretty entertaining movie -- lots of good bits and clever twists, and great action sequences of course. But it also made me feel pretty shitty and unwelcome, like I imagine you must have felt when you made this film?

Or was it ok? I mean, seriously, being a working actress and sharing screen time with Salma Hayek? Or at least, sharing a scene with her -- I'm not sure they ever show you and her in the same frame. Did you film your part in real time, or was it all put together in post?

When we first see you're the punchline of Salma Hayek's first scene. The camera slowly zooms in on her silhouette, balanced on one leg in a yoga pose, beautifully disheveled and gazing out the window of her prison cell. She looks so graceful, somehow wearing her prison uniform with effortless style and TBH really great eye make-up. Someone brings her a phone and she engages in a shouting match with her beloved cucaracha, Samuel L. Jackson, screaming at him in Spanglish with a brilliant fire in her eyes. He patiently tames her with a little bluesy love song, and she melts -- until the call is disconnected. Irate, she slams down the phone and the camera turns towards the door where we see you - in the corner, taking just a peek at her display of frustration. "Did I TELL you you could turn around?!?!?!" she screams, and you turn back into the corner where you've been ordered to stay - facing the wall - and we all laugh -- because, that crazy Latina is so crazy, it's hilarious!

And then if if you're me, a fellow beautiful fat woman, we hate ourselves. Because your job in this movie is to be the literal butt of the joke. You're clothed in a sweatsuit that has ridden up, so that we can see untidy folds of fat straining the seams as you stand in the corner like a child whose been shamed. Your shame is that you're fat. I get it, because it's mine too. Later, when she screams and bullies you again, you fart in fear, and the audience laughs again. (I assume the fart was added in foley? Or, are you THAT good of an actress?)

In another scene, she lets you leave your corner, and you race out of frame, panicked. Somehow I get the idea that you really, really had to pee. Because, you needed to get out of that corner so desperately, that's the only thing I could think you'd be needing to do in a small jail cell. So funny!

It's really important to me that you understand that I don't blame you at all for doing this role. I imagine the paycheck was pretty decent, and worth the lackluster writing. I mean, in addition to Hayek's spicy Latina, we've got Samuel L. Jackson as a foul-mouthed, street-smart, quasi-animalistic black man. So, you know, it's not like anyone was in this thing to break down any political barriers.

I want you to know that I'm so happy you did this movie, and have a lot of other credits on imdb -- I'm going to keep my eyes out for you in the future. The world needs more fat actresses -- Melissa McCarthy can't be the only one, and I'm pulling for you. More power to you, and Hayek and Jackson, and to everybody's favorite Canadian, Ryan Reynolds. Hollywood seems like a tough city and there's not a lot you can do about the roles you get offered.

I don't know what the deal is with credited writer of this film, who decided to create a funny bit about the beautiful Salma Hayek and her pathetic, bullied room-mate. He also had Jackson spit the word "retard" at Ryan Reynolds, because, you know, fat people aren't the only people who deserve to be bullied. Based on his imdb page, he looks like a bit of a nerd? So maybe he knows from experience dehumanization is always good for a laugh.

And the director? He had a little "thank you for coming to the movies" intro to the film, and he seems like a decent guy, even if aggressively committed to pleasing the white, male 18-24 year old demographic. He hasn't made a lot of films and I mean, I got a kick out of Tarrantino's early stuff too, so if he had to be derivative, at least he steals from the best. It's not totally his fault that Ryan Reynolds was wearing too much pancake in several scenes or that the sound design made a lot of the dialogue unintelligible.

I imagine they're both assholes? But who knows -- they've made it in Hollywood and created a thing, and got to work with some talented actors, and heck, the movie had really some good chase scenes.

Donna Preston, I just wanted you to know that I saw you. I can imagine what it must have felt like to accept this role. To know it wasn't much but you'd commit to your character, the terrified prison cell-mate. How good it must have felt to cash the check, and how bad it must have felt when you saw your scene. Did you know it would turn out like that? How ugly it would be?

I just want you to know that I know that woman cowering in the corner wasn't really you. I want you to know that I see you. You did a really good job with your very brief screen time, and fuck everyone else in that piece of shit movie.

With love,
Rosalie


Friday, November 11, 2016

Embodiment and Election

I moved to Massachusetts to feel more at home. But part of my heart is from the Midwest. Cornfields stretch to the horizon and time moves differently. Distances are farther but you can get there in a straight line. Between the towns, the clouds look higher.

I learned a lot about humility from people living in the middle of nowhere. But it was also exhausting. It felt uncomfortable, surrounded by so many whose perspective veered into bigotry. I felt implicated in prejudice when other white people said, "I won't Jew you down," and "I think we have enough black people in our neighborhood," and "Glad to meet you, especially since you never know -- your next door neighbor could be a terrorist."

I'm moving through stages of grief about this election. Today I am depressed and wondering if it's a good thing to live so comfortably. I moved to a "more enlightened" community -- but now I see the full depth of our ignorance. I've sought willful ignorance of what it's like to live in the rest of my own country.

Hate raged through this election, and rages on through communities, battering LGBT people, ripping headscarves off of women, scrawling swastikas on bathroom stalls. Hate is unruly and powerful, but those who commit acts of hate are in the far minority. Hate is a just a distillation -- the purest form of our lowest daily instincts: fear, self-protection, the hunger for power.

Hate's favorite target is the bodies of women. There were so many women's bodies in this election. Melania Trump's naked body, spread across a fur coat. Bleeding bodies, tampons for Trump, the carnage of lost abortion access in Western and Southern states. Battered women's bodies, fat women's bodies, the bodies of grandmothers groaning with pain as they walked a mile to vote for a woman President. Hillary Clinton's body, and what she wore on it. Her clothes, her health, her smile, her brave shimmy. Our knowledge that her body had borne a child, and her daughter's body brought her two grandchildren. So many bodies. Not enough votes.

Listening to women of color in my neighborhood and online, the outcome of this election was no surprise. This is how the world is - it's just how it is. They're pissed at us white women, and I don't blame them. We've all given up on the white men, they're just not on our side. Sure, some of them stood with us, but far more of them did not. They voted for Trump or third party, and then told us what it is that we just don't understand. It was for our own good.

But I don't blame the election on men. Blame is a search for absolution -- and we're all part of this sin. This country is racist. Our culture hates women. Poverty and hard work coexist, and unfairness and pain can be soothed by a good scapegoat. Our country wages wars and murders children with drones. War comes home to our country through terrorism, and we hand it a gun. It's every man for himself, and we bask in denial as our planet grows hot. Crocuses bloomed this November. Even our flowers are confused and burn themselves out.

Here's what I know about mothers. We know how to clean up. We will solve the crisis and patch up the wounds. We're not afraid of blood. We're not afraid of tears.

Everybody, stop speaking! Listen to the mothers.

Mothers: what is your pain? What are you afraid of? What fear brought you to a man who promises to separate mothers from their children? What terror persuades you that another woman's body should not be her own? What hurts in your marriage, that you think the love of two men or two women could possibly threaten it? What do you need? What can be done?

Never mind about the men. Let them do their thing. But if mama's not happy, nobody's happy. What world would we live in if mothers knew only hope?




Monday, May 23, 2016

Things to love about bats




The bodies of bats are soft, their bellies round and full. They can squeeze down small or stretch their umbrella-wings out, impossibly wide. They are mammals that can fly!


Bats live in boxes and caverns, attics and underpasses, forests and barns. Most bats live in colonies and rely on one another for warmth, so snuggling is a way of life.  Solitary-living bats gather in groups during migration. Baby bats nurse from their mothers while in flight.

You can see a bat's perfect bones through its translucent wings. The skin stretching between a bat's fingers is as thin as my eyelid. A bat's bones are not hollow, like a bird's. Their bones are small, but solid.

The furry faces of bats are perfectly evolved to be sensitive. Some use their ears to navigate, others use their nose. Bats can see as well as any other animal can see in the dark, but they can hear things that other animals can't. They listen constantly. Darkness is not a problem for bats.

Bats have sharp teeth that they use to eat bugs (which is helpful) or fruit (which is delicious). Even bats that eat blood only bother grazing cattle, which have plenty. Although it sounds scary, all carnivores eat blood -- the vampire bat just dispenses with the wrapping.

The way bats work doesn't make a lot of sense. If you tried to make bats act like another kind of animal, they wouldn't be able to do it. Their feet are for hanging, not walking; their arms are for flying, not feeding. Some use their nose to hear, others use their ears to see.

Bats just do their thing. You can hate a bat and she'll just go back to her nap. If it's night-time, she might pause to consider, and then she'll let go. As she falls, with a few pulls of her arms she will lift herself neatly up between earth and sky. Above the trees, a bat doesn't care what you think. A bat is at home with the moon and the stars.




Saturday, February 13, 2016

Mothers Like Me and Hillary Clinton

I’ve spent too much time making the case that Hillary Clinton is a Progressive. 

Or that I am, for that matter. I have the credentials. I've been a Democratic Socialist and worked for Fair Trade and against US Drug Policy. I've protested for criminal justice system reform and against the second Iraq war. I gave my time and money to these causes, and yet never felt I quite belonged. There was always some man -- a younger or older white man -- ready tell me what more I needed to understand. Like, when I asked if a vote for Nader might put my reproductive freedom at risk by increasing the chances of a Republican winning the election? I was told this is just a tactic of the Democratic establishment to scare naive people like me to vote for moderates. When Gore (arguably) lost, I was told not to worry, he would have been just as bad as George W. Bush.

For a long time I've felt like maybe the problem was me--that I just couldn't compete. I could never devote myself to reading the right books and subscribing to all the Leftwing publications. And anyway, there was the business of raising a family to attend to. You know, the stuff that women sometimes do, which takes us away from The Important Work of activism and organizing. 

So I had my family and worked for non-profits that you'd say are in the human welfare field. A domestic violence and sexual assault agency, and an agency helping children with serious emotional and behavioral problems. I stayed involved in LGBT activism for awhile, but as the freedom to marry became more mainstream, I started to focus on politics closer to home --- specifically to educational equity issues in my children's school district.

The work I do today is still focused on social change. But I'm not sure it would qualify as "Progressive." Like, I'm not sure the work I do to educate and empower families fits within the priorities of today's Progressive Left. There's this idea that some problems are universal--bigger than the problems I choose to focus on. And, if those universal economic justice issues are addressed, then women's lives will be improved, because we are disproportionately victimized by our unjust economic system.

Here's what I think that leaves out -- a few examples you don't hear about in Progressive agenda as it's currently defined:
  • Rape.
  • Gender- and race-based pay gap.
  • Educational access and equity
  • Police brutality against young men of color.
  • Lack of access to safe and affordable contraception, preventative healthcare, and abortion , particularly among the rural poor.
  • Poverty in women-headed households.
  • Lack of access to quality affordable preschool.
  • Lack of access to mental healthcare and quality substance abuse treatment programs.
  • Job insecurity when a relative or child gets sick.  
  • Exploitation of undocumented immigrants.
  • Sexual exploitation and human trafficking.
Some of these issues will be improved by changing healthcare policy and better regulating the financial sector. But most will not. Many of these issues don't require radical change--they just require our leaders to focus on them.

I've become the kind of person who believes in transforming our culture while living solidly within it. Call it leading from within, say "it takes a village." This is the politics I recognize in Hillary Clinton and other mothers like me -- mothers who learn to get things done from within systems because we don't have a choice. Mothers like me have kids who depend on us to keep them safe and clothed, fed, housed, and educated. Mothers like me:
  • Refuse to stop demanding that someone fix the poisonous water in Flint, MI.
    • Demand adequate resources to fund our children's urban schools.
    • Open our homes and build whole shelters to take in the beaten and raped women of our communities.
    • Show up time and again at IEP meetings and Civil Rights hearings, demanding equal access to education for our children with disabilities.
    • Demand that the murdered bodies of our children be seen by the world, in protest to a world where Black Lives are treated as if they don't matter.
    • Show up with our wives and children at the County Clerk office to request a marriage license that will protect our families.
    The Progressive movement hasn't really taken mothers like me seriously, and so I guess I'm going to stop worrying about whether we are Progressive. Our politics are coming from a different axis than the one our leftist brothers are operating on. Our politics take place along the depths of experience--at our parents' bedsides and at the graduations of our children. Mothers like me will continue to hold communities together and to shore up the programs and policies that families depend on.

    Whatever it’s called, I wonder if the men of the Left will notice, and notice soon, that mothers like me are onto you. When you say you include us: you don’t. When you say our issues are yours: they’re not. I'm not going to keep trying to convince you that Hillary is one of you, because you know what? She’s not. 

    My Progressive brothers, I'm done trying to impress you. There’s too much work to be done.

    Saturday, April 5, 2014

    My Mother's Hair

    She wore it short when I was born. 
    Wash ‘n go, walk the dog, push the stroller, 
    arrange the house (endless redecorating), 
    finish college (walk the baby), bake the cupcakes
    (baby’s birthday). Give birth (baby sister),
    play with babies, get them to school.
    Find a career (more graduate school). 
    Her whole body stretched open - my father,
    my sister - all of us held together by her arms.
    Her smile, her competence, 
    her grilled cheese sandwiches. 

    As a younger woman, her hair was long. 
    Dark with waves in her Senior Portrait,
    pulled straight back on her way to work.
    Effortless in navy and black, in smart boots.
    Finding her way out, and her way inwards. 
    Her family: a nest (her family a cage).
    She met my father, my weirdly handsome father,
    my weird and fascinating father.
    He was older (much older) but funny.
    Smart. A professor. His hair had some gray,
    his apartment, few possessions.
    Newly divorced, a man of the '70‘s.
    When they first met, she was tired.
    Her hair was unwashed.

    My mother was a power house. 
    Clothes make the woman: commanding,
    bold colors. Makeup: no nonsense. 
    Serious hair that brought out her eyes. 
    She made everything better, smarter, more beautiful.
    Staring down men convinced of their own
    importance, my mother was unblinking.
    My mother talked politics, talked justice,
    talked art. She laughed full-throated
    at ignorance and hypocrisy,
    she laughed with abundance, she laughed with joy.

    My mother was exhausted, she was stressed,
    and undaunted. She raised two
    teenaged girls with our unruly woes.
    We were demanding, we were selfish,
    loud and loving. She applauded our insights,
    our moments of grace. She counseled us
    and fed us and bought us our clothes.
    Together, we laughed.
    She taught us who we are.

    When my father died, my mother wept. 
    For three long years, her sky was gray.
    Mourning gave way and she grew her hair longer.
    She remembered her body, took it back for herself.
    Like they say in a book: she took a lover.
    She drove with him (everywhere): to California, Alaska,
    New Mexico, New Orleans. She wore miniskirts,
    she wore pearls, she wore diamonds and cute shoes.
    She argued with him violently. She let him win.
    My mother wore a smile. All the time.

    Disease took my mother, but she would not be taken.
    Her body felt everything. She couldn’t make it move.
    First limping (new shoes), then the cane (new shoes),
    then the walker, then the wheelchair, 
    then the power chair (new shoes).
    She wrestled that disease, that stupid disease.
    She insisted, she resisted, she fought. She didn’t win.
    I stood in her bathroom as she clutched her toothbrush.
    Hands losing their grasp, she brushed with her fists.
    I held her hairbrush but I never brushed her hair.
    Her hair was hers. So long. So dark. So heavy. So beautiful.


    Thursday, August 15, 2013

    What Grace?



    A friend of mine was talking about the painful process of figuring out how to help her seriously ill father while also being a good parent to her young children and pursuing a rewarding but demanding career. She works in a leadership position where everyone relies on her to set the tone, and model the highest standards of integrity and compassion, regardless of how chaotic and painful things feel inside.

    “I hope that I can help my family cope with all this with as much grace as you did when you were helping your mom,” she said.

    “Really?” I asked. “I seemed graceful? I was NOT graceful. I yelled at airline employees and insurance company representatives who are paid minimum wage for people like me to take out my frustrations with their stupid company on them. I kicked my luggage and cried uncontrollably next to the turnstiles at the airport. I yelled at a guy at dunkin donuts for not honoring a coupon. I was short with my kids, I slept in all the time, I drank too much. I sobbed in my neurologist’s office when they wouldn’t give me antidepressants to help my migraines and anxiety. They weren’t even saying I shouldn’t go on them -- they just said I should ask my primary care doctor for them. I was a complete mess, most of the time. I can’t believe you thought I was showing any grace.”

    She looked so relieved. “Thank you for telling me that,” she said.

    My friend is a picture of grace. Impeccably dressed, she exercises regularly and parents with patience and thoughfulness. She excels as a leader and seizes opportunities to build her career and develop an even more impressive professional presence. She lives in a stylish home that reflects her family’s distinct identity and taste. She travels internationally, and she writes with a skill that could make you weep. She is a good friend.

    When my mother was dying, I would see her, and tears would well up in her eyes as she listened to my story. I would tell her I felt shredded inside -- torn and pulled and stretched thin and absolutely useless to everyone and yet required to be helpful and competent always. I ate unhealthfully and stopped going to therapy and ignored every bit of helpful advice anyone gave me about taking care of myself. I felt disconnected from my kids, and when I was with them I worried I should be with my mom. When I was with her, I worried about how my kids were doing, and felt guilty for the burden I was imposing on my husband by being away. I felt like a complete and utter mess. Yet my friend thought I’m the one who had it together.

    Why do we think other people handle things so much better than we do? If we like someone, especially, we think that because they aren’t walking around with mascara running down their face or hair matted from forgetting basic hygiene, that they have their act together unlike we do (even though we’re basically showered and coherent most of the time). I know a few folks who struggle with severe depression, and even these folks seem graceful and kind -- they may not be career go-getters -- they may hold back in some areas, but they love their kids and take time to make their children’s lives more joyful. When they leave their house, they look good, even if they are feeling awful.

    My friend and I, and many of us, it seems, have made the same mistake of thinking we must be failing because boy, does holding it all together feel hard. But the truth that strikes me as I think about my friend is that it feels hard because it IS hard. Life is hard. People we love will suffer, and they will die, and we will be powerless to stop it. We will get sick, our bodies will hurt and grow tired, and people will do things that make us angry. There will be injustice beyond our power to stop, and it will directly hurt people we know. Our children will experience pain -- they will learn that life is painful. Adversity will enter our lives in a messy jumble that we cannot pull apart.

    We don’t get to “take things as they come,” because sometimes things come at us so fast, and from so many directions that we get knocked to the floor. In my own life, within the past four years my younger son received a potentially life-threatening diagnosis, his brother was diagnosed with a developmental disability, my husband was laid off from his job, my career maintained a stressfully amorphous quality, and then my mother was diagnosed with a debilitating terminal illness, ALS, from which she died just 14 months after the diagnosis was confirmed.

    This was all very, very hard. And the whole time, I felt bad about how I handled it.

    One time, my sister and I were driving a bright red rental car from Chicago, where we had each flown in, to Macomb, Illinois -- about four hours away. We were talking and venting, laughing and getting choked up, scheming about how to remain a team as we helped our mother and her partner face her awful illness. We were the only two who knew what it was like, what we were going through -- the difficult dance of being dutiful daughters while pushing our brilliant and stubbornly independent mother to allow others to help her when she needed it.

    Lost in conversation, I lost track of my speed until I saw the police car’s lights and heard the siren. I pulled over to the side of the road, and I started to cry. I told the officer, “I’m so sorry, I lost track of my speed -- we are driving to see our mother, who is dying.” My sister tried to speak up for me and tell him I don’t usually drive like that, and he snapped at her, “Don’t tell me how to do my job,” taking my license and returning to his squadcar.

    We sat in stunned silence, waiting for him to return. He brought back my license and handed me a written warning. “I”m giving you this warning NOT because of what you said, but because you have a clean driving record,” he said. “MY mother goes to the hospital every single day because she is also sick,” he said, “and I don’t USE HER ILLNESS as an EXCUSE for BREAKING the law.”

    “Thank you,” I gasped, “I’m sorry,” I repeated, beginning to shake with anger and shame. My sister and I got out of the car to switch drivers, moving swiftly, startling him in the process. He stepped back, then said, more kindly, “I hope your mother gets better."

    “SHE WON’T,” we both shouted, slamming the doors; my sister pulling out onto the highway and driving away at an appropriate speed.

    This is what we do to ourselves. We lecture ourselves that the struggles we face are no excuse for failing to live up to our idea of how we are "supposed" to be. Why do we do that? Why do we act like an arrogant cop, ready to bust ourselves for making mistakes or having moments when we lose ourselves in our emotions? Why do we police our own grief for any sign of weakness or imperfection?

    I also wonder why we assume everyone else is ok. When my mother was facing her illness and I was traveling to see her at least monthly, then every couple of weeks, other people would open up to me about the burdens they were carrying. Most of my coworkers and many of my friends struggled to be dutiful children to aging parents who were starting to decline in health or mental capacity. Many of my friends have children with learning disabilities, allergies, or health concerns. Friends have crappy bosses, or more bills than they can pay; I have friends who’ve had cancer or lost a spouse to illness or accident.

    None of us are full of grace all the time. None of us is spared of the burdens of living and working and loving who we love.

    Instead of policing ourselves, we should spend as much time as we can commisserating, gossiping, sharing stories and laughing. We should catch ourselves being kind, notice that we are coping, reward ourselves for making it through the day instead of punishing ourselves for the effort it takes.

    “That’s life,” the saying goes -- often as a way to get someone, for instance a sullen teen-ager, to stop complaining. But there’s another way to say that: affirmatively, as an acknowledgement that yes, this is hard, and this is how life is. This is life.

    A saying I like better is: the only way forward is through. Stumbling clumsily, with jagged edges and shredded patience, the grace that we show emerges simply from our continuing to go on. We get up in the morning, we show love to our family, we work and complain, we sob and we laugh. That’s life.



    Saturday, June 22, 2013

    Remembering my mother


    I think about my mother every day. I know that the people who loved her and were loved by her think of her all the time, too. For those who were unable to attend her memorial service, I wanted to share some of the images, music, and words from that day.


    You can read the obituary that Phyllis and I wrote for our mother here and here. There were several news items on WIU's website and listservs and facebook pages of feminist organizations helped to spread the sad news.


    We held the memorial service at the WIU Multicultural Center. My mother had been an active supporter of the creation of a welcoming home for the Gwendolyn Brooks Cultural Center, Casa Latina, and the Women's Center. My mother and ten other women contributed towards the installation of a stained glass window in the library/lounge of the Women's Center, "Honoring our Mothers."

    Our dear family friends the Howds, Nulls, and Diehl-Earlies helped us to select the artwork and set up the space, along with my friend Parisa Parsa, who officiated the ceremony. Phyllis and I chose to have only roses for flowers, and we all worked together to create memory boards filled with pictures and to select pieces of my mother's artwork -- her collages and a few decoupaged items. We also displayed the photograph from the Women of Western Centennial Phographic Exhibit.

    At the welcome table we placed a small vase of roses, the programs, a photo of my mother with Phyllis and me, a guestbook and a box filled with rubber bracelets embossed with WWPD -- which stands for What Would Phyllis Do? This was a comment that so many people had made to us during the week following our death. Many of us, including Phyllis and I, felt lost without her.  We wanted to ask her advice on what to do.

    Of course, it's intended to be funny, too, because my mother was often very forceful in her advice-giving and could laugh at herself for this trait while still insisting that you listen to what she was telling you. Anyone who reads this and would like a bracelet, email me your address and I will send you one.


    Jim chose the opening and closing song -- they were both songs that my mother would interrupt conversation for, telling Jim to turn up the volume so we could all listen.  When we sat drinking wine and deciding on music for the program, Jim put this one on and we all sat quietly, the tears beginning to flow. We knew this was the one to start with.


    Rebekah DelRio - Llorando



    My Uncle Patrick then shared his Eulogy. We had asked him to share some memories about what our mother was like as a young woman -- where she came from. Patrick's memories and images truly captured just how cool my mother was.


    Phyllis read her Eulogy next, in which she captured our mother's thinking, her beliefs, and what she stood for personally and professionally. She chose "American Tune," to end, capturing the spirit of my mother and giving us all moment of reflection -- a lullaby to comfort us.


    Eva Cassidy - American Tune 


     Next I read my Eulogy, attempting to capture my mother's role in so many lives as a generous and caring source of strength, comfort and good advice.The song I chose to follow my words was "Nobody Does it Better," and yes, it was supposed to be funny. I also can't imagine who could possibly replace my mother's sage advice and ability to know how things should be done.

    Carly Simon -
    Nobody Does it Better

    Jim spoke extemporaneously, thanking everyone for coming and explaining that the music we had been listening to were all important to my mother and had a connection to my mother. They were songs that my mother loved, or songs that made us think of my mother. He expressed how much it means to see so many people who love her like we do.

    He then asked everyone to listen closely, and asked for the volume to be turned up, so the music could fill the room.

    At the Four Corners with Jim

    Philip Glass - Forgetting


    Parisa ended with a prayer, and we collected ourselves and shared tears and hugs over refreshments provided by our friends. 

    Jim's kids returned to the house and set out a beautiful reception for everyone to return to when we were ready to leave the memorial.

    It was a day filled with love and I thank all who drove miles to be there, who shared words and hugs, and who made donations in my mother's honor. 


    In total, approximately $2,000 was donated to both the McDonough District Hospital Hospice and the WIU Women's Center, and around $4,500 was donated to WIUM Tri-States Public Radio.

    My mother's name has been added to the Memorial wall at the hospital, next to my father's. We also received notification of many donations to the ALS Association or Les Turner ALS Foundation
    .

    The faculty senate at WIU passed a resolution in mom's honor, and I recently learned that she had been named Professor Emeritus, which I had not realized. According to her colleague Janna Dietz, an undergraduate political science paper will be awarded in her name beginning this year and her friends and colleagues are working toward a named scholarship that will honor her teaching contributions. 


    It's an incredible comfort to see all of these memorial tributes honoring my mother and we are blessed to be surrounded by such love.  I hope that these remembrances and images are helpful for those who wish to feel part of that day of remembrance.




    Friday, April 5, 2013

    Holding

    I've been thinking about the phrase, putting my life on hold. 

    My mother is in the end stages of ALS, aka Lou Gehrig's disease. It's as awful as you think it is. There was a time period where we thought it was ALS, then she was told it was Multiple Sclerosis, and we were like, crying tears of joy and relief. It's just MS, thank God! But then she got a third opinion. Doctors hesitate to issue death sentences and therefore hesitate to be definitive with this particular diagnosis, but it was confirmed to be ALS.

    My mother is hilarious. When something good happens to her these days -- like she got a big tax refund because she had thousands and thousands of dollars in deductions because of all of her medical expenses -- she smiles and delivers her favorite punchline, I'm so lucky. 

    Having an awful illness really does make you courageous. It's something people say, oh she's so courageous to battle this disease. If you're on the inside, part of you cynically thinks, well, what else is she going to do, give up and die? But then on the other hand, it's probably true that we human beings do have a lot of courage. The simple fact we don't give up and die proves it. So yes, my mother is courageous. 

    The frustrating thing of course is that I didn't need this stupid, awful illness to show me that -- I already knew that from the way she has always lived her life, a loud-mouthed, opinionated, brilliant thinker who challenged the utter stupidity of prejudice in countless ways as a mother, teacher and small-town activist. She raised two feminist daughters who believe that our identities, happiness, bodies and minds have value -- no small feat in our culture. 

    I'm 39, and I think about the fact that she finished her PhD after 40. Who does that? Who believes strongly enough in themselves to finish college *after* they have kids, then goes on to pursue a PhD in their 30s -- finishing just as her kids enter adolescence? Who has the self-confidence to agree to pause her tenure-track to apply for an interim Dean position, when the University President takes notice of what an outspoken and kick-ass leader she is among the faculty? Then, accepts the permanent position, making her the first woman Dean of the College of Arts and Sciences at Western Illinois University. Then negotiates an awesome golden parachute during a later regime change, securing a cozy retirement for herself and showing the rest of us "this is how it's done, ladies." 

    Who does that? My mom.

    So, I've put my life on hold to help care for her. I took a formal leave of absence from my work, after calculating that we can survive on Kevin's salary for a few months. I spend about equal amounts of time with my mother and her parter in Illinois, and with my family here in Cambridge, doing my best to keep up with the emotional, educational, financial, and therapeutic/medical needs of my children. Although traditionally I love my work, it's easy not to work when my mother's needs are so much greater. It's very, very hard to be away from my kids. I am grateful to have a husband who is a true life partner and keeps the homestead humming along while I'm away. I'm grateful that my sister and I can take turns so my mom and her loving, amazing partner Jim are less alone in this "end stage."

    Everything is on hold. The kids aren't doing activities because it's too crazy to keep up. I'm not working, and don't volunteer for the kids' school if I can avoid it. All I do is focus on taking care of my children and taking care of my mom.

    When I'm in Illinois, I spend a lot of time sitting with her while she sleeps. She sleeps in her power wheelchair because she can't reposition her body and her back begins to ache terribly if she tries to lie in bed. Her bed is adjustable, but her wheelchair is customized and has a lot more ways you can move. Among its cruel ironies, ALS paralyzes you but does not take away your sensations. You can think and feel as always. So if your foot has become twisted, you can't straighten it out. ALS has also robbed her of her ability to speak, so she makes noises and points - thankfully she can still move her arms - until you work out what is causing her pain and help her fix it. When you relieve her pain, she has to lie back, exhausted from the effort to communicate. 

    It's ok to leave her alone while she sleeps, but it scares me to think of her struggling, alone, unable to call for help. Jim takes incredible care of her, but he needs to be able to leave the house sometimes. She is utterly dependent on others despite holding onto every last ounce of independence that remains: her ability to make decisions, to type a message on her iPad, to drive her wheelchair, to lift a strap on one of her medical devices. Jim, my sister, and I have to be a team - supported by friends, my sister's husband and mine,  the hospice nurses and my mother's neurologist - in caring for my mother.

    I help her administer medications. She has some regular pills she takes, which we crush and dissolve in water and inject through her feeding tube. Feeding tubes sound invasive, but hers is just this little rubber hose with a nozzle on the end that goes into her belly, held in place by a plastic disc. I insert the end of another plastic tube into the nozzle, and formula flows through from a bag containing formula --  like what babies get but formulated for adults. She does feedings twice a day, napping and watching tv, or checking email while she is nourished. 

    I help her get her biPap machine on -- her arms have recently grown very tired, and when she tries to pull the headstraps back over her head, sometimes she has to stop to rest because it is so exhausting. I help get the back part, and she positions the nose piece. Although she prefers to have Jim help her with her most personal bodily needs, sometimes I help her to use the bathroom. They installed an expensive, un-insured piece of equipment in their bedroom and bathroom which is the primary reason she is not in a nursing home: an electric lift. With the push of a button, we lift her in her sling out of her wheelchair and slide the sling along a track in the ceiling so that she can then be lowered onto the toilet, or between her chair and bed. The only time she gets into bed is to have a sponge bath. It's too hard for her to sit up on the shower chair they were able to use for many months. 

    I also help her use these foam swabs to apply a medication inside her mouth, because she has thrush -- a yeast overgrowth caused by being immunocompromised and unable to swallow. It's also exacerbated by the nebulizer treatments she has to do to maximize her airways. I help her with the nebulizer and this thing called "the vest," which provides percussive rattling to her ribcage to loosen up secretions that build up because she cannot effectively cough.

    I give my mother morphine and ativan to help calm her body and make breathing feel like less of a struggle. My mother does not want to go onto a ventilator, and her particular course of illness is causing her diaphragm to be slowly paralyzed, which will eventually stop her breathing. Her lungs are healthy; she could get pneumonia from aspirating liquids, but more likely her perfectly healthy lungs will become nearly motionless. She will stop being able to pull oxygen into them and expel carbon dioxide from them. She will go into a deep sleep and then she will die, and I will miss her terribly.

    So, I have put my life on hold. Holding implies an uninvited pause -- an in-between space. Sometimes it feels like the opening scenes of The Graduate, where Dustin Hoffman is gliding along a people mover inside an airport -- in between terminals, in between college and real life, floating along, in between. Being on hold with health insurance companies and healthcare subcontractors has been a major activity of mine since my mother became unable to be understood on the phone, and it is sometimes frustrating. Some days feel like that, like when I'm sitting at home in Cambridge in my pajamas, wondering if I should be doing something different than watching reality tv and folding laundry. 


    Other times, when I make my mother laugh,
    or she types into her iPad something really helpful like, "I need you, but your family needs you too. Go home to them" -- I feel the other sense of hold. I feel held by her love, even as she grows weaker. And I know that my love -- and the love of her partner, my sister, and her dear friends -- are holding my mom. This cocoon that illness has woven for us blocks out the light, but it also sustains us.

    Thursday, December 6, 2012

    Fifteen Years

    Fifteen years ago this morning, I was thinking about what to wear to a party where I’d see a bunch of friends I had known when I was a teenager. I was 24, in graduate school studying religion. I was young and thin and smart, with long hair and perfect skin, and I chose eggplant satin pants and a see-through shirt with velvet leaves.

    On the way to the party, I mentioned to my graduate school friends that Glastonbury is an affluent suburb of Hartford, that all these friends were good friends who I’d done musicals with in high school, and that I had no idea whether we’d fit in. I mentioned that I’d heard Kevin Fanning was coming, and that he was a writer and had a good job, and had just returned from a weekend in London. I mentioned I’d had a crush on him in 8th grade, and that I hoped he would think I was hot and want to date me. I’d recently lost a lot of weight, so in my fantasy, I would flirt but eventually reject him, just for fun. I didn’t need anyone to be happy -- I was young and thin and smart, and life was good.

    That’s not how it turned out.

    Fifteen years ago this evening, Kevin Fanning swished into that party wearing pleather pants, a pink top, and spiked hair, bleached at the tips. He kissed me on the cheek with the familiarity of a close gay friend, and I thought, “oh, well he may not want to date me, but we can be friends and talk about cute boys.” Then the flirting began. He teased me about divinity school. We went outside for a smoke and he gave me mints. We made each other laugh, we both loved Buffy the Vampire Slayer (him, the show; me, the movie) and thought Mike Myers made the funniest movie ever (him, Austin Powers; me, Wayne’s World). We made out on the host’s bed, next to a pile of coats and a porcelain Christmas village that lit up from the inside. A friend offered us a ride home, and I rode holding Kevin’s hand. When we got to Kevin’s house, I expected him to pull me inside, but he gave me a kiss on the cheek and said he would call me.

    I called him. Or emailed, I don’t remember. What I remember is the incredible anticipation of getting to see him again. There were emails and mix tapes, a first date in the North End, evenings in the austerely decorated bedroom of the house he rented with a group of college friends, kissing under Christmas lights, strung above his bookcase. That first year, we decided to move in together. During the next year, we committed to remaining happily unmarried for the rest of our lives.

    We moved from our Somerville triple decker to a top-floor apartment with a roof-deck in Jamaica Plain, with exposed brick walls and a mouse problem. We moved to Illinois with our cat and our sanity barely intact from navigating a U-Haul across interstates -- the cat meowing all the way above the sound of a tinny, staticky radio.  We worked in jobs that made us unhappy, decorated our house, bought a Christmas tree, and had a baby. Baby Raimi loved the lamp above our dining room table, but the house was not ours -- so we bought one with a down payment from our parents and moved in. Raimi made me happier than I could have imagined, and I was scared that another child would take away from what we had. 

    I was wrong. Baby Kinnell made our family complete. The four of us laughed together, crawled around on the floor together, played together, went for walks in the beautiful parks and playgrounds of Champaign-Urbana. Our kids rode big wheels and drew in chalk on our sidewalks. Raimi went to Kindergarten and Kinnell became everyone’s favorite at his daycare. Raimi and Kinnell are one another’s friend and protectors, and they go through life with a peaceful good humor that I attribute to their father. 

    In this fifteen years, Kevin lost his Grandma Helen and his Great Auntie Anne, and the first adult to encourage his writing, his friend's beloved mother, Rosemary Cronin. I lost my father. When my father died, my mother called Kevin first, so he could come to comfort me. I was sitting at my desk, stunned at the news, when he wooshed in and wrapped his arms around me. We gathered up the kids and drove across Illinois to mourn.

    In this fifteen years, we moved to Cambridge, the first place I’ve ever lived that felt like home. Our children were each diagnosed with a condition that they can live with, and I spent my spare time educating myself about medical and educational systems that I never imagined needing to know about. Kevin has been the life partner every parent dreams of -- at my side when I needed him, splitting off to care for one child while I cared for the other. Kevin washes the dishes every night and does all the laundry.

    In this fifteen years, I have read the funniest, most brilliant works of fiction, startled by the fact that they were written by my husband. The humanity - embarrassing, awful and beautiful - that he captures in his stories - gives me hope. Kevin’s writing makes me feel like whatever I’m worried about will be ok. He makes me feel like it may be awful, but it’s what we have. He makes me feel like maybe it’s actually quite meaningful, this life. 

    In this past year, Kevin has finished a novel, that -- I can’t even tell you how good it is. The main character, Katie Raygun, is the girl I imagined myself to be in my childhood fantasies -- tough, hilarious, smart, with kung-fu moves. She is a complete person with mistakes and stupidity and dreams and competence. She kicks ass and thinks for herself. You will read it, I promise. It’s so good.

    In this past year, my mother was diagnosed with ALS, and Kevin has been the stabilizing presence that keeps our family together in the most literal sense. Because of Kevin, I will never regret the time I have spent away from my kids, helping my mother or simply being with her. While I am gone, he takes the kids to weird restaurants and shuttles them to their lessons. He takes them shopping and supervises their homework and introduces them to fruitcake. It is a lot to travel cross-country every month, and if Kevin were not my husband, I could not do this. He makes it possible for me to do this. It is a gift I cannot adequately describe.

    Oh, and we got married. In the midst of our move to Cambridge. It was just the four of us and Chaplain Gay King Crede, in the small chapel at Cunningham Children’s Home. The kids signed our marriage certificate after joining us in saying aloud, “Love makes a family.” 

    I love Kevin Fanning so much. Today is the anniversary that we celebrate, because it was the beginning. I am thankful every day for the gift of our commitment and the joy of our partnership and marriage. 

    Happy Anniversary, my love.

    Monday, June 18, 2012

    She Loves You

    The Beatles were the first band that really meant something to me. A nerdy preteen girl with braces and glasses, I was sure I was completely unlovable. When I popped my Rubber Soul cassette into my Sony Walkman, the world around me would fill with lightness and love. I may have had all the wrong clothes, but that's not what mattered -- all you need is love, love is all you need.
    I could not, would not be forced to choose a favorite Beatle. The balance of spirit (George), critical thought (John), and love (Paul) seemed to capture it all.  I loved the idea that if he hadn't been a Beatle, Ringo would have been a hairdresser. The dorkiest Beatle was, to me, also the most relatable. 
    I knew it would be very uncool to love Paul the best, especially when I'd talk with guys about it. They'd dismiss Paul as a sap, argue that Wings was proof that without John, Paul would be nothing. I remember watching The Compleat Beatles and thinking all those girls screaming about how cute Paul was were ruining the music for the real music fans. But this begs the question: why did the girls love Paul?
    My high school friend Beth was an unashamed Paul fan, and I remember thinking that was so cool. Beth was a pianist and knew what she was talking about musically. If John was the guy the boys all wanted to be, then maybe Paul was the guy the girls all wanted to know.
    Some of my favorite Paul songs: I've Just Seen a Face, Good Day Sunshine, I'll Follow the Sun, Blackbird.  Each of these songs has some sadness in it, uplifted by joy. How could I not imagine myself in the lines, "And then we lie / beneath a shady tree / I love her / and she loving me."


    The best songs of Paul's solo career are incredibly catchy. Underneath every cheesy post-Beatles line is a propulsive melody, sung with a wink. I'm a little obsessed with "Live and Let Die," and will fight to the death to argue that it is better than every other James Bond theme and if I'm really being honest, better than the movies themselves. 
    You used to say live and let live 
    (You know you did, you know you did you know you did) 
    But if this ever changing world in which we live in 
    makes you give in and cry:
    Say Live and Let Die  
    The song is hilarious. It's hilarious to imagine vegetarian animal rights activist and devoted husband to Linda, Paul McCartney growing as jaded and callous as James Bond. It's just not in him. Someone called him up and said, will you write a James Bond theme song, and he said, sure. Then instead of evoking a bunch of sexy naked ladies dancing to a thrusting musical score, he came up with a musical chase scene, a bunch of puns and grammatical contortions, and the jokey old-fashioned promise to "give the other fellow hell."
    I happened to catch the radio interview with Paul on NPR's Fresh Air, and was so riveted I had to listen to it uninterrupted and then listen to it again with my husband. You can hear how starstruck Terry Gross is when he discloses he's sitting at a piano and will happily demonstrate a few musical concepts for her. 


    What comes through is how much Paul loves his family. He talks at length about what an important musical influence his father was. You hear in Paul a loving son. The interview doesn't mention it, but Wikipedia informs me that he named his first child after his mother. In the interview he speaks of his love for his new wife, and he sings a few lines:
    What if it rained?
    We didn’t care
    She said that someday soon
    The sun was gonna shine
    And she was right,
    This love of mine,
    My valentine.

    He describes writing these lines at a lounge piano in a hotel where he was vacationing with his wife. It was raining and he was feeling disappointed about the weather, but his wife told him she didn't care because they were together. He realized she was right, and plunked out the melody, while waiters and bus boys set up for the dinner service.The interview is really lovely, ending with him describing the room where he's recording: a light-filled music studio in the English countryside. 
    Paul's life hasn't been all sunshine and happiness. He's lost a wife he loved dearly to cancer, seen his best friend murdered during a time when they were barley speaking, and seen another dear friend stabbed and nearly killed -- eventually succumbing to cancer. It's only Paul and Ringo who are left, and they get together to play music sometimes, you hear in interviews. I mean, how could they not.
    That guy's been through a lot of sadness and keeps on singing sentimental, light-filled songs about love. He jokes about sex ("why don't we do it in the road?" naming his album Kisses on the Bottom) -- and he means it. He seems to know pretty well that he's the luckiest man alive.
    Choosing a favorite Beatle is like choosing your favorite child: there really is enough love to go around. But at this moment in my life, I'm really into Paul. The last several years have brought a lot of pain into my life, and at times I've felt powerless and alone. Although I didn't used to like the song "Let it Be," it speaks to me now. Paul was in his early 20's when he sang, "When I find myself in times of trouble, mother Mary comes to me speaking words of wisdom: let it be." 
    He was just a kid who'd lost his mother, and remembered the comfort she gave him during her life. His mother's love stayed with him, and came to him when he needed it. This week I sat by my own son's hospital bedside and told him that same thing: it's going to be ok, I promise. I love you. Paul wasn't the first to suggest that a mother's love is powerful, but not a lot of rock stars would choose that as a theme in their music, or talk about it in interviews.
    There's a gender issue in all this of course -- my sense of Paul McCartney as a husband and father, as a son and someone who loves and listens to women, and remembers what they say. Sure, Paul has written a lot of silly love songs, and his attempts at political relevance are sometimes a little clunky. But I appreciate that the love Paul writes about isn't a philosophical idea of love, but a bodily kind of love: two people lying together in the shade, a mother coming to her son's side. It's a love with kisses and arms and shouts of joy. 
    I always thought it was clever when, at the end of "All You Need is Love," Paul sings a phrase from "She Loves You" -- reminding everyone of where the Beatles started. But on another level, the reference inserts the idea of relationship into an abstract metaphysical statement. The way it comes out is something like:

    Love is All You Need
    Oh Yeah! Love is All You Need
    She loves you, yeah! yeah! 
    Love is All You Need

    The love you take is equal to the love you make -- it's an equation and a relationship, and that relationship is all that will matter in the end. Amen.
    Happy Birthday, Paul! I love you!

    Monday, April 25, 2011

    Easter

    My family visited Mount Auburn Cemetery on Easter morning during a week in which I'd spent seven days indoors caring for sick children. As we were about to end our trip and get in the car, I took this picture of my five-year-old, Kinnell, perched in a beautiful and very old tree.

    That evening, I remembered an experience I had when my older son, Raimi, was just two years old and I was pregnant with Kinnell. Getting your child to sleep is a challenge for many parents, and at the time we were in the grips of a seemingly endless struggle to get him to go to sleep on his own, in his own bed, without a parent lying next to him. Exhausted and defeated and feeling like the most permissive and unhelpful parent on earth, I lay next to Raimi and prayed to a God I wasn't sure I believed in.

    Dear God, I prayed, if you are there - if anyone is there who can hear this: I am so tired. I work hard all day and do my best to take care of this child every single day. I am frustrated. I feel hopeless, and I can't believe that something as ordinary as getting a child to sleep can make me feel so powerless and alone. I wonder what's the point of it all. If you are there, can you please give me some sign -- some reason for hope?

    My body was relaxed but I did not fall asleep. An experience filled my senses, more than a vision -- a sense of complete awareness. I felt myself held up by the branches of an enormous tree with smooth grey bark -- the kind of tree I used to climb as a child, whose thick branches contained easy resting places and spots to hide behind green leaves. In another branch I saw Jesus. I didn't think he was God, he was just hanging out there, not making any demand or offering any particular comfort. I felt the smoothness of the bark, its strength and solidity holding me up as solidly as the ground although I knew I was in the air. I felt safe. I knew I was being held, and it would all be ok.

    It turned out that both the child I was soothing to sleep and the child I was carrying each was born with a disability. My kids' lives stretch before them, yet thanks to the insights of genetic counseling and neuropsychological analysis, we have glimpses of the course their lives will take. Kinnell will face health problems. Genetically-determined patterns in Raimi's mind mean that he perceives the world differently than most people, and may struggle to understand and have his insights understood.

    I wasn't thinking of my experience of God/prayer/tree when I lifted Kinnell up into the tree at Mt. Auburn Cemetery. I just saw the tree, and it seemed to reach out and ask to be climbed. It was open and solid, smooth and ancient. So I lifted Kinnell up and took a picture.

    That night I wondered, was the tree that held me when I prayed to God also holding Kinnell as his spirit formed and his body took shape inside my belly? Thinking about these two experiences of trees, a phrase came to mind: I contemplate a tree. Here is the passage it is taken from, from Martin Buber's I And Though (as translated by Walter Kaufman):
    I contemplate a tree.
    I can accept it as a picture: a rigid pillar in a flood of light, or splashes of green traversed by the gentleness of the blue silver ground.
    I can feel it as a movement: the flowing veins around the sturdy, striving core, the sucking of the roots, the breathing of the leaves, the infinite commerce with earth and air--and the growing itself in its darkness.
    I can assign it to a species and observe it as an instance, with an eye to its construction and its way of life.
    I can overcome its uniqueness and form so rigorously that I recognize it only as an expression of the law--those laws according to which a constant opposition of forces is continually adjusted, or those laws according to which the elements mix and separate.
    I can dissolve it into a number, into a pure relation between numbers, and eternalize it.
    Throughout all of this the tree remains my object and has its place and its time span, its kind and condition.
    But it can also happen, if will and grace are joined, that as I contemplate the tree I am drawn into a relation, and the tree ceases to be an it. The power of exclusiveness has seized me.
    This does not require me to forego any of the modes of contemplation. There is nothing that I must not see in order to see, and there is no knowledge that I must forget. Rather is everything, picture and movement, species and instance, law and number included and inseparably fused.
    Whatever belongs to the tree is included: its form and its mechanics, its colors and its chemistry, its conversation with the stars--all this in its eternity.
    The tree is no impression, no play of my imagination, no aspect of a mood; it confronts me bodily and has to deal with me as I must deal with it -- only differently.
    One should not try to dilute the meaning of the relation: relation is reciprocity.
    Does the tree then have consciousness, similar to our own? I have no experience of that. But thinking that you have brought this off in your own case, must you again divide the indivisible? What I encounter is neither the soul of a tree nor a dryad, but the tree itself.
    I first read these words when I was taking a college course in 20th Century Theology. Religious studies at the University of Iowa exposed me to the idea that religion is the place where human beings can wrestle with suffering and emerge with a sense of meaning. Not that suffering is itself meaningful, but that life has meaning even in the face of suffering. In Buber's writing, this meaning emerges when we are fully present, open, and in relationship with the world as it is and other human beings who are themselves being present and open with us.

    Trees and art are part of Martin Buber's work on I-Thou relationships, but his primary concern is the human relating to another human -- the I and the Thou. Kaufman uses Thou to indicate that the you is himself or herself also an I -- it is a mutual relationship between two subjects, not a subject and an object.

    Buber wrote I and Thou after a student of his committed suicide. The student had come to him before killing himself, and Buber felt he had failed to fully engage with his student and his suffering. He felt intense remorse that his student had found his suffering so unbearable as to extinguish any sense of purpose, and Buber hadn't helped.

    During this time I also read Paul Tillich's The Courage to Be. Writing after an early career as a Chaplain during World War I, Tillich had witnessed and grappled with the extinction of hope; and with its resurrection. The crucifixion of Christ on the cross conveys this experience for Tillich, and as a non-Christian I was moved by the power of this understanding of the symbol of the cross. In practical terms, I realized, we live in a world that is shot through with suffering. The rational response would be nihilism, and yet we have hope. We believe it is worth it to go on living. Most of us do go on.

    Studying religion at the graduate level, I hoped to find a clear sense of the way towards deeper connection, truth and meaning. I found many examples of the religious life, but I did not find my own path. The religious paths I studied had been carved out largely in solitude by Buddhist monastics, Roman Catholic mystics, social justice martyrs. I tried prayer, meditation, visited many different houses of worship, posed as a Unitarian Universalist. I lived my life relationally, not in solitude. I met my life partner and settled on working for a living. I became a parent. I felt I lost my way.

    Yet, in the moments when I have felt most constrained and burdened by the work of raising a family and keeping a home, I have experienced these flashes of insight and meaning. I contemplate a tree and meaning emerges.

    Above, Buber's phrase, "if will and grace are joined" seems to hold some key to understanding the process by which this meaning emerges. Through an act of will, we can choose mindfulness and seek to remain open. Through some external grace, meaning breaks through.

    So perhaps the path I am walking is not as well-defined by the footsteps of those with the time to document and map their way; but it does seem to have been worn deep by the laboring of everyday families and communities seeking to live and to love. Not everyone uses their will to create openness to grace, but how is a monastic retreat chopping wood and preparing meals so different from the daily work of dishes and laundry, working and cooking dinner, caring for children? Doesn't patting a child to sleep require the same discipline as sitting zazen? Your body is tired, your mind strains against the monotony, you lose your sense of self. Isn't the work of parenting, working, loving and friendship just as abundant with richness as any work there is?

    I'm not trying to be lazy or get out of doing the spiritual work so many teachers have written about. I'm seeing the path I have been given, and finding that the difference between a right path and a wrong path may be an illusion. Is the difference really the path, or the openness of the one who walks it?